Favorite Hannah Picture

Favorite Hannah Picture
"Yes, the park!"

Hannah Ballerina

Hannah Ballerina

Play Time

Play Time
"Go super fast!"

Hannah's Room

Hannah's Room

Happier Hannah

Happier Hannah

Hannah sleeping 4-13-10

Hannah sleeping 4-13-10

Preschool Friend's Art

Preschool Friend's Art
Yeah! Friends!

Tuesday, July 13, 2010

Fancy Dresses & Bad IV Needles

Today, Hannah decided that we should wear dresses to the hospital. I was thinking she meant sundresses, so, I put one on. She came out in this.



She said she meant FANCY (drag all the syllables out for the correct pronunciation) dresses. I explained that the dress barely fits and does not have any buttons. Since she was willing to deal with the hassle of a port access in a non button shirt, I said ok.

Turns out, the port access was going to be hard no matter what. Children's has switched their IV needle supplier. They are going with a new kind that lists the size of the needle on the outside of the butterfly. Very helpful information to be able to read while the kiddos are accessed. Plus, their old supplier kept back ordering them.

Hannah hates this new needle. It is supposed to be the same size but it is coated with a silicone like product for comfort. Oh, the irony. I really don't know if that is the problem, but she complains non stop when this needle is used. It is hard for even one hour let alone when she is accessed for 5 days. The entire visit changes. It clearly hurts. I am going to talk with her doctors at our next visit. There has to be a better solution.

On the plus side, Hannah is going to start physical therapy to help her legs. She currently has considerable leg pain from the chemo and falls often. Thankfully, the physical therapy should be able to help her with that.

Hope everyone is doing well and please keep us in your prayers.

6 comments:

  1. That sucks about the needle. Poor Hannah. I hope the doctors can figure out a better solution for her. Hannah, you look beautiful in your fancy dress. It's nice to get dressed up sometimes and be all girly. I totally get that! A girl has to do what a girl has to do.

    Love, Kathy

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  2. Hi Carrie,

    This is Kandie, Cece's mom - I just found out about Hannah and wanted to offer our support!!We would love to have Aaron over for a playdate if that would help at all - I am available Mondays & Tuesdays and any weekend!!! Please email me kandice.trenary@gmail.com - Our thoughts and prayers are with all of you.

    Stay strong Hannah and keep wearing fancy dresses!

    Love,
    Kandie and Cece

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  3. Hi Kandie! Aaron would love to have a play date with CeCe. She is such a doll.

    Just a PS. on the fancy dresses. I stayed in the sundress. Several people have asked if I then changed. I was lame and didn't rock the fancy stuff. ;-)

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  4. Fancy is as fancy does so they say. She is a fancy girly girl no doubt but really has a mean way with the bat and balloon. So sorry to hear numbers were down so low we had no play date at Rians. Hope good new happens. Time to have a balloon party. The four we blew up were her two sweeties and I got the two boy balloons. It was really fun. Need a Play date this week Ms Hannah so prayers are going up for the count to be really really high. We need a swim party again.
    Wish I new how to post some of those cute pictures I captured of her.

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  5. Count down days for the big move. Rian really is wonderful, would have loved to see my son playing tea party next time I will be the fly on the wall and get some pictures. Hannah we all are excited for your first site of your bubble gum pink girly girl room Get out the ICarley posters. You have four bright pink walls waiting for your decorations.
    Boys, Steven made sure you both got a pretty special paint job too.

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  6. These images are looking fantastic thanks for the sharing.

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