Today, Hannah decided that we should wear dresses to the hospital. I was thinking she meant sundresses, so, I put one on. She came out in this.
She said she meant FANCY (drag all the syllables out for the correct pronunciation) dresses. I explained that the dress barely fits and does not have any buttons. Since she was willing to deal with the hassle of a port access in a non button shirt, I said ok.
Turns out, the port access was going to be hard no matter what. Children's has switched their IV needle supplier. They are going with a new kind that lists the size of the needle on the outside of the butterfly. Very helpful information to be able to read while the kiddos are accessed. Plus, their old supplier kept back ordering them.
Hannah hates this new needle. It is supposed to be the same size but it is coated with a silicone like product for comfort. Oh, the irony. I really don't know if that is the problem, but she complains non stop when this needle is used. It is hard for even one hour let alone when she is accessed for 5 days. The entire visit changes. It clearly hurts. I am going to talk with her doctors at our next visit. There has to be a better solution.
On the plus side, Hannah is going to start physical therapy to help her legs. She currently has considerable leg pain from the chemo and falls often. Thankfully, the physical therapy should be able to help her with that.
Hope everyone is doing well and please keep us in your prayers.