Favorite Hannah Picture

Favorite Hannah Picture
"Yes, the park!"

Hannah Ballerina

Hannah Ballerina

Play Time

Play Time
"Go super fast!"

Hannah's Room

Hannah's Room

Happier Hannah

Happier Hannah

Hannah sleeping 4-13-10

Hannah sleeping 4-13-10

Preschool Friend's Art

Preschool Friend's Art
Yeah! Friends!

Wednesday, May 19, 2010

Two Day Break!!

Yeah baby! With the first five days of the new chemo behind us, we get to have two days off from Children's until we have to go back again Friday for another spinal procedure. The new chemo is an adjustment, but it went better than I thought. She has lots of ups and downs still from coming off the steroid treatment and her energy levels are bizarre. Around eight at night now she has a burst of energy till about ten. However, sometimes during the day she will be talking to you and fall asleep mid-sentence! The nurses gave me a trick for helping with nausea. If I give her the meds every eight hours instead of them giving her a dose at treatment time then we can stay ahead of her getting to sick. It really works!

Oh, I also have a thank god moment! The spinal procedure on Fridays require Hannah not to eat all day. It is so hard on Hannah and getting a morning appointment is impossible. They only have an anaesthesiologist in the morning and afternoon. Plus, they can only do so many of these appointments in a day. Since babies get the first appointments, you have to schedule MONTHS ahead to get the morning spot, or know some people in low places who would be willing to bump a baby for you. (just kidding). We found out last week she will have this procedure every Friday for the next two months. Dread. I prayed like crazy for the impossible, morning appointments, or at least early afternoon.
Our scheduler dropped off the itinerary on Monday. All morning appointments!!!! Every single one. One more time, Yeah baby!(by the way, yeah baby, is Hannah's favortie saying, which is funnier in the tone she uses)

6 comments:

  1. I hope you and Hannah enjoy your two days off.

    Jackie and Kevin are looking forward to playing with the kids tonight!

    Liz

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  2. Happy to hear you got the a.m. appt's! Anything to make it easier for Hannah. Your in my thoughts and prayers. I have a box to mail as soon as I get home.....Have some really cute hats for you!

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  3. Thanks Liz! You have great kids! They were awesome and so polite. You must be so proud.

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  4. Carrie,

    Jax and Kev told me how well behaved your kids were....

    And please ANYTIME you need babysitting help, please call us.

    We WANT to help your little family.

    Take care (of yourself too),

    Liz

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  5. P.S. Kevin's post on Facebook...

    "Just babysat that sweetest children on Earth"


    Liz

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  6. Carrie, I wanted you to know I have been thinking about you and Hannah and your family ever since Mackenzie gave me this news, and have been sending your family happy thoughts. I sent your blog and donation info to people I thought could help and hope it does. I must confess I just read your website today and have had a steady flood of tears for the past 20 minutes. I am happy to see things are progressing well and congrats on the morning appointments. YEAH BABY!

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