Yeah baby! With the first five days of the new chemo behind us, we get to have two days off from Children's until we have to go back again Friday for another spinal procedure. The new chemo is an adjustment, but it went better than I thought. She has lots of ups and downs still from coming off the steroid treatment and her energy levels are bizarre. Around eight at night now she has a burst of energy till about ten. However, sometimes during the day she will be talking to you and fall asleep mid-sentence! The nurses gave me a trick for helping with nausea. If I give her the meds every eight hours instead of them giving her a dose at treatment time then we can stay ahead of her getting to sick. It really works!
Oh, I also have a thank god moment! The spinal procedure on Fridays require Hannah not to eat all day. It is so hard on Hannah and getting a morning appointment is impossible. They only have an anaesthesiologist in the morning and afternoon. Plus, they can only do so many of these appointments in a day. Since babies get the first appointments, you have to schedule MONTHS ahead to get the morning spot, or know some people in low places who would be willing to bump a baby for you. (just kidding). We found out last week she will have this procedure every Friday for the next two months. Dread. I prayed like crazy for the impossible, morning appointments, or at least early afternoon.
Our scheduler dropped off the itinerary on Monday. All morning appointments!!!! Every single one. One more time, Yeah baby!(by the way, yeah baby, is Hannah's favortie saying, which is funnier in the tone she uses)