Favorite Hannah Picture

Favorite Hannah Picture
"Yes, the park!"

Hannah Ballerina

Hannah Ballerina

Play Time

Play Time
"Go super fast!"

Hannah's Room

Hannah's Room

Happier Hannah

Happier Hannah

Hannah sleeping 4-13-10

Hannah sleeping 4-13-10

Preschool Friend's Art

Preschool Friend's Art
Yeah! Friends!

Thursday, May 12, 2011

She is still @ Children's

I have to make this brief and will try to give more details later. Hannah is still in the hospital. She has really been struggling this week. We have had days too bad to talk about. The mouth sores (which are little ulcers) are covering her tongue, gone down her throat, and through her GI tract. It is horrifically painful.

Half our trouble is because she is so young. When in pain, she doesn't always vocalize, she goes a little crazy. She screams, kicks, hits, spits, pulls at her tubes, anything to change what is happening inside. She also has that reaction as a side effect to some of the pain medicine they give her. Figuring out how much pain medicine and which one to use has been a trial and error at her expense. This is going to sound crude but it fits on the most basic level. This all SUCKS!

The good news is her fever is gone. Also, she seems to be stabilizing on pain and erratic behavior today. Her counts look like they are trending upward so hopefully she is on the mend.

Thank you all so much for your continued support and prayers. We have needed them!

3 comments:

  1. My thoughts are with you guys. I hope she feels better soon.

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  2. Oh Carrie it sounds horrific - that poor little girl, and I can not imagine how hard it is for you to have to watch and stay strong. Will be saying my prayers for you both tonight. x

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  3. Here's wishing they could slip all of you a little something to take the edge off until this episode is over. Thinking of you. x

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