I could literally start calling Fridays, Weight Check Friday. We seem to have one every week.
Last week I was on the confident side on the scale. This week...
Well, let's just say that I checked the label on the jar and there are only 5 little calories in a pickle. Five. Despite everyone's constant efforts as the best short order cooks in town, pickles, are the main thing that she has been willing to eat.
I can't even begin to explain how feeding this child has consumed our lives. The amount I am able to get in her keeps me up at night. This must be the point those other parents were talking about when they felt relief at the tube finally going in. I still don't wish that for her, but right now, I might understand where they are coming from.
Hannah, however, never gives up. Knowing what tomorrow is, she has done her best to eat more. Tonight is a PTA support night at a local pizzeria. For every pie you buy a portion will go to the PTA. Hannah says she wants to go and eat lots of pizza. Fortunately, her ANC is high enough for me to comply and God knows she needs the calories. So, with an abnormal supply of hand sanitizer/ disinfectant wipes, we are off to eat pizza and support the PTA!
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I hope she ate a whole pie! Crossing fingers that she gets the appetite back ASAP.
ReplyDelete<3 Sarah
Hi Carrie,
ReplyDeleteUmmm... you don't know me, but I've been following Hannah's story for a while, and plump thoughts are being sent her way.
I know you've probably thought of all this, but one of my kids Would Not Put On Weight as a baby. No matter how much he ate, he barely made the bottom of the curve, from 9 months to 20 months (he's still skinny as a rail, but he popped up on the curves at 20mos, for no reason we could discern).
Anyhow, I don't know if Hannah has any restrictions, but some of the things we did to keep Perry's weight up were... well, there was one main thing: the Butter Plan.
Everything he ate had a large pat of butter in it. Oatmeal? Butter. Cheerios to practice the pincer grasp with? Fry 'em in butter (not kidding...). Mashed potatoes? Butter. Mashed yams? Butter, and hey, a let's add some sugar there too. Scrambled eggs? Add a tablespoon of butter once they're done. If he would eat anything dipped, I'd melt butter in the dip.
Basically adding loads of calories without any bulk. Dunno if this helps.
I don't suppose you could batter and fly those pickles?
I'm rooting for you and Hannah... and btw? That park photo of her on your front page? Perhaps one of the most beautiful representations of a child's happiness I've ever seen. It makes me smile every single time I come here.
Awwww, poor Hannah! And poor Mommy! I can't imagine how hard that must be, because I fret over this when my kids have the stomach flu or any cold that prevents her from eating.
ReplyDeleteI will say a pray for her every time we sit down to have a meal.
Did she make weight check this week?
ReplyDeleteLiz
Did she eat a whole pie? I would love to see such a thing XXOO
ReplyDeleteThank you guys for all the concern! She actually ate an entire slice of pizza. She always gets ham and pinapple and I ordered a margherita pizza for the boys and I. She loved it. Says she only wants that kind now.
ReplyDeleteLeila, thank you for the suggestions and compliment on the picture. Children's lays out different food plans for the different types of chemo she will be on. Like when she has steriods or when she has the drugs that destroy her appetite. Something similar to the butter plan is what they suggest. It sounds like you know my pain! Frying cherrios, now that is dedication! Also, a side note, in Seattle, there is a restuarant, Fierabend, where they serve fried pickles with a curry ketchup for dipping. It is SO Good!