The back poke, they give some of her chemo drugs directly into her spinal fluid, went much better this Friday! I talked with her Dr. about the reactions she has been having, which usually got me the vague "Some kids just react that way" answer. This time, I came armed with information. We went over in detail the medicine they were using for her anesthesia. Turns out, they were giving her a pain medication called Alfentanil that sometimes causes aggression in kids. So, we skipped it this time. She took longer to awake but she woke up happy. No wild eyed screaming, kicking, and throwing things. She also didn't break down later in the day as she did previously. She slept most the afternoon but she was a happy camper the rest of day and now....
A WHOLE WEEK OFF!!!!
Our next visit isn't until Friday. Our job this week is to keep her healthy so that her blood counts stay up. We need that to start the next round of chemo. Please keep us in your prayers and thank you so much for all the prayers thus far!!
Subscribe to:
Post Comments (Atom)
Dear Sparkly Hannah,
ReplyDeleteHappy Sunday! Or maybe Happy Rainday? I'm glad that you're home and feeling better. It was fun to see you again at MacKenzie's house; you were so good with little baby Cadence. You know what? She'll smile for you the next time you see her! And her mouth must be connected to her arms and legs, because whenever she smiles, her arms and legs go crazy. She'll make you smile and laugh just like when you smile it makes your mom and dad smile and laugh.
Have a wonderful day and keep sparkling!
MacKenzie's mom
Hi Rita!
ReplyDeleteOh, I am missing me some Cadence! Could you get a picture of that smile? With Mac & Brian being sick, I don't know when we will get to see her next. She needs to slow down on that growing up! :-)
Carrie
Carrie, that is awesome that you figured out the cause of Hannah's reactions. Your persistance pays off again!
ReplyDeleteWe will certainly keep the prayers coming!
Sarah W.
Carrie you are so smart to figure out why she had such a bad reaction...smarter than some of those doctors! Good for you for advocating for your daughter.
ReplyDeleteYou impress me.
Enjoy your week!
Liz
Carrie you are the inspiration in my day. Such a tenatious mom. Not letting anything get by you for your baby. Good for you. So happy Hannah did so much better. Soon the move will be on and everything will be much calmer and roomier for Hannah and boys to roam. Hope she can use the swing set alot this summer. Her own private Park.
ReplyDeleteLove you. always in my prayers. GM patty
Thanks Patty! That is really sweet of you. I can't wait to be moved either! Boy, do we need the room.
ReplyDelete