Sunday, March 4, 2012
My Baby Girl
Those Disney pictures took a really long time to download. After four months, they are finally in and I can update the blog. Soo, how has everyone been? Hee hee. Just kidding.
Our lives have been a bit hectic since coming home from DisneyWorld. I had foot surgery when we got back and was on crutches for around a month. The very day I got off crutches a piece of my hot water pipe broke and flooded my house. We moved back into our house February 12th.
However, those pictures have been like a procrastination road block to updating Hannah's blog for me! Mainly, because my upload speed makes snails look like they are moving at a breakneck pace. Also, because there is so much to tell you all about the trip. The time to do it justice just couldn't be found. So, I'm not. I am going to update the blog with the here and now. The Make A Wish trip details will have to arrive to the blog randomly as time allows. On to the here and now.
First things first. Doesn't her hair look great?? It is back to her original hair color and growing in thick and pretty. Not fast enough for her, of course. She constantly wants me to try and french braid her hair. Yep. At that length. She is agitated quite quickly at easily given responses like "Oh, baby it is still too short for that", so, I try. We give up usually after mere moments of trying and instead go for small clips or headbands. For whatever her reasons, she feels better if we attempt it.
School for Hannah is going impressively well. She got student of the month in January!! She got to except her award in front of the an all school assembly. I am SO proud of her. She had suffered some damage as a result of the chemo. Initially, when kindergarten started, she didn't know her alphabet, couldn't write her name, didn't know her numbers, and got Parkinson's like shakes when trying to cut a circle out with scissors. Now, she is writing her name and many other things. She loves to write real words and always wants to know how something is spelled. She is reading small books, is great with math, and can cut paper into a myriad of shapes without a single shake. Infact, I do believe she is the main culprit in my constantly missing printer paper.
We are still in the thick of the cancer fight. She has been having some ups and downs with her ANC counts. At this stage of the game, they like to see her counts steady, between 750 and 1500. For both November and December her counts were between 4,000 and 5,000. We upped her chemo doses. Some of them to at or a bit above 100%. That's high. In January, her counts came back down, around 1200. It was a short lived sigh of relief as February had her counts at over 4,000 again. We upped her chemo. We go Friday to Children's for a back poke, (chemo in her spinal column) and to check her counts. I'm not sure what the bouncing counts are from, exactly. They are worrisome altogether and attempting to steal the peace I had gained. I am trying to remember we are in this for the long, bumpy road. Crazy counts might just be one of the bumps! Whatever may come, God has a plan and I have to trust.