CJ Buswell, is a guy I have known for years now. He works for one of my customers and is the nicest guy you could meet. Every time I would see him, he would ask how Hannah was doing. He has a daughter near to her age.
I remember hearing that he and his wife were having another baby. I was so excited for them. Just 12 weeks ago they had a beautiful baby boy named, Casen. They knew right away something was wrong.
Their gorgeous baby had a cluster of very obvious blood vessels around his chest. After months of agonizing trips to Children's with very puzzled doctors, they found out why.
Casen suffers from a rare condition known as Plaque Type Glomuvenous Malformations, which is caused by a missing gene. He is only one of 14 people in the world to have it.
Doctors here don't even know how to treat it. There is a doctor in Belgium with some experience and they are hoping to get there.
I am posting a link to a fund raising web site. It also has updates on how Casen is doing, as well as a better explanation of his condition.
CJ and his wife Jenna are wonderful people. If you can help, please do.