Favorite Hannah Picture

Favorite Hannah Picture
"Yes, the park!"

Hannah Ballerina

Hannah Ballerina

Play Time

Play Time
"Go super fast!"

Hannah's Room

Hannah's Room

Happier Hannah

Happier Hannah

Hannah sleeping 4-13-10

Hannah sleeping 4-13-10

Preschool Friend's Art

Preschool Friend's Art
Yeah! Friends!

Tuesday, May 22, 2012

Wonderful Family; Extremely Rare Condition

http://www.giveforward.com/casenpcifund


CJ Buswell, is a guy I have known for years now.  He works for one of my customers and is the nicest guy you could meet.  Every time I would see him, he would ask how Hannah was doing.  He has a daughter near to her age.

  I remember hearing that he and his wife were having another baby. I was so excited for them.  Just 12 weeks ago they had a beautiful baby boy named, Casen.  They knew right away something was wrong. 

Their gorgeous baby had a cluster of very obvious blood vessels around his chest.  After months of agonizing trips to Children's with very puzzled doctors, they found out why. 

Casen suffers from a rare condition known as Plaque Type Glomuvenous Malformations, which is caused by a missing gene. He is only one of 14 people in the world to have it.

 Doctors here don't even know how to treat it.  There is a doctor in Belgium with some experience and they are hoping to get there.

 I am posting a link to a fund raising web site.  It also has updates on how Casen is doing, as well as a better explanation of his condition.

 CJ and his wife Jenna are wonderful people.  If you can help, please do.

1 comment:

  1. Poor sweet boy! This family will be in my prayers.

    ReplyDelete