Sunday, July 31, 2011
Long Term Maintenance
Striking a pose!
LTM is a whole lotta pills! She can't swallow pills yet, so there is quite a bit of cutting, crushing, and mixing. I am pretty sure I could be a full fledged pharmacist!
The fact that all this is done at home has changed everything. Our time is not broken up between hospital and home. We spend less time talking or thinking about needle pokes, hard chemo, and navigating side effects.
This freedom is so alluring. We can't help but feel done with cancer. Yet, everytime I turn around, I am still having to tell Hannah, No. We can't do that, yet. She still has a port to protect and she still has to watch for germs.
Which, is why Rick, at Metro Parks is our new rock star. We discovered an awesome splashground park right next to (so close, how did I miss it before?) our house. It looks new and so enticing. Big grass area, new playground equipment, a zip line, and finally a huge section with different things spraying water. Hannah went nuts. I sighed. I had to tell her we might not be able to do that. Depending on how they treat the water, it might be a, No. She handles these disappointments so well, it makes my heart hurt for her. I promised I would find out.
I called Metro Parks the very next morning. It was a Friday. After some shuffling around I was transferred to Rick. I explained our situation. All said and done, he called back three separate times within about a half an hour. He got me every single detail about how the water is cycled and treated. With every chemical by name, amount, and time it is used. He gave his personal cell just in case Hannah's doctors had questions. Guess what? It was safe enough to go in. We played all Saturday. Thank you. So much.
Aaron in the middle with the mohawk.
Hannah and Andrew