We are headed back to Children's here soon, but I wanted to let everyone what is going on. I'm sorry if it isn't very detailed. I will add a better update soon.
Wednesday night Hannah was readmitted to the hospital. She has a strange, constant headache that is not presenting in the way you would expect considering the procedures she has recently had. She had a spinal tap on Monday. We also found out in the ER Wednesday night, that Hannah had a sudden drop in red blood cells and needed a transfusion immediately. Those are the two things the doctors are concentrating on as a reason for the headaches.
I think they are wrong. There are a few other oddities in symptoms that make me feel the headache is a symptom of a separate issue. However, I was unable to research this while in the hospital. Sometimes, it is hard to get doctors off a scent. I have been up to eyeballs in medical lingo, so I haven't had time for a proper update.
I am off now to go argue with doctors. Please pray for Hannah. She is struggling through the best she can. I am so proud of her.