Hannah had chemo every day this weekend starting with Friday and will go through Tuesday. It is going be the same for this up coming week as well. I now also have a chemo pill to give her every night that requires me to have gloves and a whole special set up. Our med list is ridiculous, I have become a pharmacist!
Friday's chemo was in the spinal column and under anesthesia. Saturday's treatment was through her port and was six hours! All I can say is thank god for Aqua Sand. This is a strange and amazing, colored sand product that you use in water. It is mailable in water and completely dry when it hits air. All the nurses stopped by our room to play! She sat in her recliner chair in the hospital getting chemo and played non stop with this stuff for 3 hours. It also kept her entertained for Sunday's chemo treatment as well. So, a big thank you to Laurie, Crystal, and Danielle from Holaday Parks for getting that for her!
As far as how she is doing with the new chemo, Friday afternoon was really the worst of it. She was screaming and throwing things one minute and crying and wanting hugs the next. I didn't know if it was a bad day or how every day on this leg of the treatment would be. Thankfully, the rest of the weekend was easier emotionally for her.
She is off the steroid treatment now and on to four different types of chemo that all have the side effects of loss of appetite, nausea, and tiredness. We literally went from Saturday morning where I was very worried I hadn't packed enough food (there was enough for three grown adults) to Saturday evening where I couldn't convince her to eat. Sunday she woke up very nauseous but luckily the medicine they have for that is really good. Her hair is starting to fall out, I find it everywhere. It reminds me that we are going to need to go hat shopping!
Other than those new side effects, Hannah is holding up great. Our friend, Tammy, had the boys this weekend, thank you Tammy, and Hannah was really excited to see her brothers on Sunday. With all that excitement she fell asleep pretty early and I am heading there too cause tomorrow is another fantastic day at Children's. Hope you all had a great weekend!.